I don't have CF but...

Alright bitches, how many of you with a chronic illness, or hell any one of you ever had some idiot come up to you and say, "I don't have (Insert dumbass remark ie: chronic illness, kids, etc.) BUT..."? While I am sure MOST of the time the poor idiot means well, it most definitely doesn't fucking help and you are left sitting there like "WHAT IN THE ACTUAL FUCK IS THIS BULLSHIT GOING ON RIGHT NOW? DID I TRAVEL TO ANOTHER DEMENTION? AM I IN FUCKING WONDERLAND OR SOME SHIT?" If any of this hits home then this post is for you!

This evening I got on a Cystic Fibrosis Facebook page and saw a semi-funny picture (below) of a pigeon puffing his chest out. Well then some cum wad commented that the picture wasn't  funny. Reason being, his kids have CF and CF hurts them so of course people who have the disease can't possibly make fun of it. Alright all I fucking see with that is "I don't have Cystic Fibrosis BUT I can tell you how you are supposed to deal with your disease even though you are 26 fucking years old because I'm a god damn parent of a Cystic!" Like the fuck? Get over yourself and crawl back under your fucking rock ya pansy ass bitch. Grow a God damn pair. Nobody will tell me or ANY-FUCKING-ONE else how we can or cannot deal with our shitty ass disease. I have literally seen shit like that so many God damn times I'd be a fucking billionare if someone gave me $1 every time that fucking happened.

NEWSFLASH dumb fucks, we are not fucking angels. Do NOT make us out to be something we are not. If you fuck wads believe we are supposed to act a certain way you are automatically setting yourself up to be publicly ridiculed.

Next up are those dreaded "CF Mamas" who say, "I don't have CF BUT watching you die in pain by suffocation from CF is WAY worse than actually having the disease itself. It's the truth cause I'm a CF mama." Like first off what the fuck kind of label is that? "CF Mama". I won't get into them quite yet. I could go on and on about "CF Mamas" so I will save that for another day.

Anyways I know we as Cystics have a different experience than our oh so wonderful parents. I as a parent (luckily my daughter doesn't have CF) hate when Calli has to get a shot and see her cry afterwards. So I can only imagine what our parents go through. I am not trying to take away from their experience whatsoever. HOWEVER I have personally seen some of those dumbass "CF Mamas" say that shit in other groups.

Take a moment to bang your head against a wall like a bull trying to ram straight through it.

Better?

Now how in the fuck can you sit there and say that shit?!?! It makes no fucking God damn sense. Like I would love to just put them in an insane asylum and lock them up forever so that society and mostly their child does not have to grow up with such a mother fucking idiot.  Please God if you are real, let me do that. I cannot fathom the thought of EVER fucking telling my child, or hell anyone else for that matter, that being their parent is WAY worse than any disease she could possibly have. Get it through your thick fucking skulls "CF Mamas", you cannot possibly imagine what we go through. So how the fuck can you sit there and tell people that being your fucklets parent is WAY harder than them actually going through the fucking disease itself.

Have you ever heard, "I don't have Cystic Fibrosis (or any other topic) BUT I know how you feel." Just stop there. Like no. Get the FUCK out of my God damn face with that noise. If you tell ANYONE that shit without personally going through it yourself, have someone slam your hand in a car door, and hard.

One of my personal faves is the, " I don't have Cystic Fibrosis BUT I have Asthma, so basically the same thing!" This requires an immediate punch in your fucking face while kicking you in the God damn dick/cunt. Ain't nobody got time for that honey. Drop 'em and leave 'em.

Last but not least the, "I don't have Cystic Fibrosis nor am I a doctor BUT let me sell you some of this snake oil (essential oils, colloidal silver, what have you) to cure you." When people say this shit I immediately bust out laughing. Like you want me to sit here and actually believe that you, a lonely piece of shit peasant trying to capitalize on sick people/kids/their parents, has the cure even though all those scientists working for a cure hasn't found one yet? Oh please, spunk bubble. I will fucking cut you down faster than you can say Adolf Titler. How the fuck can you sell a "snake oil cure" to those who would do or believe anything in hopes that it will cure themselves or their loved one? Does it make you cum a little each time you suck their dick for money? Let's face it that is exactly what you are doing.

These people, who do this fucking shit, should be publicly shamed. I ask you, my lovely bitches, to fucking stand up to these mother fuckers and say, "No more twat waffle! You have no God damn idea about my situation. Go fuck yourself while jumping off a cliff."

With Love,

Hollie Jesus

Idiot Columnists

Well, first post so let's just dig right in shall we?

So I saw a post in a Facebook group I am in. It was an article about a 10 year old girl with Cystic Fibrosis, like myself, whose Orkambi prescription was denied by her insurance. As of right now only people 12 and up are allowed to be prescribed this medication as the drug trials to get it FDA approved, only covered those 12 and up. Like what in the actual fuck. Of course the fucking insurance company denied the fucking prescription. IT ISN'T FDA APPROVED FOR KIDS UNDER 12!

This idiot of a columnist wrote a story (Which I will post the link to so all can read it.) about this girl being denied the medicine and it will basically save her life. Ok bitches for all you idiots out there who STILL don't know jack shit about it, ORKAMBI IS NOT A FUCKING GOD DAMN CURE!!!!

With that said how will this medicine even help her but maybe gain a few percentages of lung function back. But nooooooooo these people want it for the girls sinus issues. Alright the effects of Orkambi with the sinuses were NEVER studied in the trials to get it FDA approved. It was only studied for the LUNGS.

Currently the Cystic Fibrosis Foundation is conducting a more broad scale study into how Orkambi affects the rest of the bodies functions which include the sinuses. I am in this study and it just recently started a few months ago.

Anyways this "writer" (I say it with quotation marks around it as we all know a REAL writer ALWAYS checks the facts before publishing a story.) also states that the girl has liver damage already. Anyone with a brain can Google Orkambi and learn that it can cause liver damage. Before I was prescribed Orkambi myself, I asked about the liver issues. My CF doctors told me that it is usually the people with pre-existing liver issues that tend to be the ones that have to stop the medicine. So why the fuck would they want to put this poor child through more shit with her liver? Like come the fuck on get some God damn common sense fuck heads.

Then at the end of the article the writer states that they are raising money on a GoFuckMe (GoFundMe, this is how I view that site.) so they can raise the money to get it for their kid. Like Vertex is NOT going to illegally give this medicine to this kid no matter how much of a sob story it is. They could lose so much if they did it including the current research going on.

I am so sick of these kind of stories. I really wish that the editors and writers took it upon themselves to fucking look up the God damn facts. If you are wondering, yes I did email the facts to this "writer" so she can know she fucked up for not double checking the facts.

For y'alls viewing pleasure:

http://www.vvng.com/adelanto-girl-denied-the-one-medication-needed-to-save-her-life/

I even included my email to the "writer". I dulled it down so she'd actually read it.

With Love,

Hollie Jesus